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Showing posts with label Angelina Jolie. Show all posts
Showing posts with label Angelina Jolie. Show all posts

Wednesday, June 08, 2016

I Found A Lump.

These words are always scary. There are very few instances where finding a lump on your body is a good thing, unless that lump is the size of a watermelon and you're pregnant.

But finding a lump in my boob was very scary.

A few weeks ago, I was getting out of the shower and noticed an area that was warm to the touch and red about the size of a silver dollar. It was when I went to feel it that I noticed the lump. In one moment, I felt every fear I've ever had and every sense of mortality hit me in the face and then the stomach.

And then I vomited.

Literally, had to shove Genghis out of the way on the counter to hit the sink in time. I had such a visceral reaction not only because my mom died of breast cancer, but because of how eerily similar this felt. She had noticed a red spot on her boob. It itched a lot. The doctors thought it was a spider bite. Then she got a lump the size of a softball. It happened in just a week or so.

My mom had inflammatory breast cancer, which is really rare. The lump wasn't actually the cancer but her body's reaction to the cancer. Most people with inflammatory breast cancer don't get a lump. They get a red, warm spot on their breast that itches. Which was what I suddenly had.

I had to be at a client's that morning so I rushed out the door. I called OB-GYN offices because I was sick of my hobbit Larry David gyno and wanted someone new. Someone who would understand why I had vomited that morning and fit me. Unfortunately, that wasn't the case. New patients don't get priority.

But I remembered a clinic specializing in breast health that my rheumatologist had told me about so I called them and was able to get an appointment for the next day. I didn't sleep great. I told Chef and my friends Meredith and Amanda, and my boss only because I had to reschedule a meeting with him to make the appointment work.

I went in and was happy to find a whole room full of women in the clinic who took my lump, my worry and my breasts as seriously as I did. They heard my family history and had me classified as high risk so that I could get additional screenings covered by insurance. They did a biopsy that very moment and a sonagram of my breast to look even further. They discussed my case as a group treating me and worked to get genetic testing taken care of. They made me feel like they would be there to hold my hair back if I vomited again.

The biopsy came back less than 48 hours later as benign.

But tomorrow is a different day. Tomorrow I go back because the results of my genetic testing are in. I get counseling as to whether I am a carrier of cancer genes. (Did you know that only 10 percent of all cancers are genetic? Another 30 percent are familial but not genetic. Weird, right? Fun fact to amaze people at parties. You're welcome). I've literally been thinking things like "What percentage of probability is the tipping point for me to pull a full Angelina on my boobs?".

It's stressful. It's been something I haven't wanted to think or talk about, but here it is. I wonder tomorrow if I'll be in the "Knowledge is power" or the "ignorance is bliss" camp. I guess I'll find out soon enough.

Monday, May 20, 2013

Could I get a double mastectomy?

Technically, the answer is yes. If it were discovered that I had a genetic predisposition to breast cancer that would make it virtually inevitable that I would get it, I would physically be cleared to get a double mastectomy.

The bigger question is: Could I?

This seems like an easy answer: yes. My mother suffered for three years with breast cancer and I was there to witness a lot of it. Why would I NOT choose to get my boobs cut off if they were killing me?

I have always had a certain amount of vanity around my breasts. When you're the fat girl in a group, you use what you have, and unfortunately quick wit and a love of sports didn't help me lure the dudes in. I knew the fact that my boobs grew slightly more than my stomach no matter how much weight I gained was one of my body's saving graces. Even at my lightest, I've never been devoid of large chesticles. It's genetic.

Just like cancer. So when Angelina Jolie made news last week by doing a voluntary double mastectomy, it made sense to me. She had also watch someone suffer and once you've seen that in someone you love, you will do anything you can to avoid. Not necessarily just for your personal pain and discomfort, but also to spare those you love of seeing you in pain and discomfort.

I commend her for making the bold choice which only seems bold because she is known for her physical beauty for her job. Her livelihood but not her life, and that's where I'm glad she made the distinction. I've never been a huge Angelina Jolie fan, but this choice kind of wiped out the vials of blood and kissing her brother craziness of her youth.

So back to the question, I physically could get a double mastectomy. I think I would mentally have a lot of anguish but in the end opt to do it. So what else is left? The one thing they don't necessarily talk about in Angelina's case: financially being able to do it.

The test for BRCA1 and BRCA 2, the genes that can determine the elevated risks for breast and ovarian cancers,  costs about $3,000 and is not universally covered by insurance. Elective surgeries, despite preventing millions of dollars in healthcare costs for insurance companies compared to actual cancer, are also not always covered. And plastic surgery in the case of an elective surgery is yet another elective surgery.  It's a sad, but true, state of healthcare we are in: intervention is covered, prevention  not so much.

So for me the question is could I potentially cover the estimated $68,000 or so it would cost if my insurance didn't cover it? Should this type of testing and subsequent procedure be covered? Shouldn't everyone have this opportunity?

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